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The 24 hour rule


I’m not really a big fan of rules, but the 24 hour rule is something that has been drilled into me since I was a child (you’ll have seen it mentioned in my interview with Mummy Lipman last week), and I think it has played a huge role in shaping how I manage life around my […]

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Invisible Illness Awareness Week: Meet Mummy Lipman


Invisible Illness Awareness Week has rolled around yet again, and this time I decided to do something different. Inspired by the lovely Sophia, I thought I’d get my mummy involved and ask her a few questions about what it’s like to have a child with chronic illness. I’m 27, and am unfortunately much more dependent […]

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Gimme drugs! It’s time to start trying painkillers again


Everyone seems really shocked when I say that I don’t take painkillers. Especially considering my pain levels are ridiculously high. And I have a crazy high pain threshold. I always said that I didn’t see the point in taking them if they didn’t work. The biggest “wow” moment during my EDS diagnosis was that opioid painkillers […]

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My Top Tips For Being Productive With Brain Fog


Along with the pain and fatigue and the million other horrid symptoms, the increasing levels of brain fog in my life have become incredibly problematic. I’m currently far too foggy to think of clever analogies for brain fog that aren’t just “brain fog”, so I highly recommend reading Rosie’s excellent (and hilarious) post on that […]

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