I know what it’s like to feel isolated, scared, frustrated and (most obviously) unwell as all hell.
From continuous hospital appointments, the inability to work and the lack of knowing what each day will bring, chronic illness can be a really lonely and terrifying thing to have to deal with.
I have spent the last 26 years fighting against my body, desperately trying to find ways to cope through the constantly changing trials that my body threw at me.
And although every day is a complete and utter struggle, I have found over time ways of living, eating and managing that work for me.
Ultimately everybody and every body is different. The way we experience our illnesses and the world around us varies greatly. But one thing I have found as a common thread is the desire to have someone to talk to who can just nod along, squeal “oh my god, me too!” and, of course give gentle (often virtual) hugs.
Since sharing my experiences publicly, I’ve received so many incredible emails from people all over the world, who have taken time to reach out, tell me their stories and share how reading my blog and social media accounts makes them feel like they’re not the only one.
While I’m far from figuring everything out, I feel like I’m in the fortunate position of having got a lot of the basics down. I may not be physically well enough to work in the “real world”, but I’m finding ways to set up my own business, trying to find a diet that works for me and incorporating significant lifestyle changes to help manage what can often seem unmanageable, especially with so much conflicting advice circling around social media.
And so, after many requests, I am now offering limited (spoon required saving!) one-to-one Skype coaching sessions for young people with chronic illness.
I am just about to finish a course from the Institute of Integrative Nutrition to become a qualified Health Coach. I offer one off and structured 1, 3 and 6 month programmes to help support you in finding ways to take control of your health in the best way that works for you.
Together we will work through things like:
- Diagnosis struggles and finding the right support
- Finding a diet that helps you manage your symptoms – even if you have very little energy
- Body image and the exercise dilemma
- How to incorporate ongoing lifestyle changes
- The impact of our health on our relationships and the people around us
- Work. There’s so much there .
- Managing flareups
- Feeling isolated and misunderstood
- Empowering yourself to understand all the deluge of information on the internet.
And much much more. I’ll be your champion, your shoulder to cry on if that’s what you need and a friend to keep you accountable in finding structures and challenges that will help make your life a little bit easier.