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Archive of ‘Blog’ category

When It’s More Than ‘Just’ Being Double-Jointed

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I didn’t see it when it first came out, but there’s been a little bit of an outrage explosion in the hypermobility and Ehlers-Danlos Syndrome patient community. A petition has been launched on change.org demanding an apology from ITV show This Morning. “There was a phone in regarding whether children should be excused from PE and whether parents […]

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The clichéd ‘what I learned in 2015′ post

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Happy nearly 2015, everyone. It has been a long bloody year. Actually, it seems to have gone insanely quickly. I’m really excited for my little holiday tomorrow, and I am very much looking forward to having a break and doing a bit of exploring. I’ve been promised it is magical there this time of year, so I have […]

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Getting to grips with ‘true’ resting

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Pacing. Resting. Just hearing those words is enough to make me frustrated. Granted, frustration is generally one of my go-to emotions so it’s probably not all that surprising. I’ve been thinking more and more about resting and pacing since a number of flares have left me feeling considerably worse over the last couple of years. This came […]

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